Mark's Our Boy: Oh what a night!

I left off at about 1:30 in the morning on my last blog! Oh what a night....Mark refused to sleep from the moment his tube was removed until this afternoon. With one cat nap at about 3 in the morning for and hour and a half! He was very unhappy with the "Darth Vader" mask that was a mandatory device. With many battles during the night of having to restrain Mark and keep his mask on it was not fun. He may have asked for water about 5,000 times...this is no lie. He would ask Doctors, Nurses even Housekeeping just for on cup of water. It was just not allowed at this point. Mark even had his own little victory he had worked on all night in the heat of his battles..he managed to rip out both IV's in his hands! Boy was he a happy camper, but to his surprise he received a new IV in his foot.
After rounds with all the teams they made the decision to sedate him this afternoon so that we could keep the mask on him. This was still important to keep on with combination of steroids to get the swelling down. He did not receive his first dose until after 12 or so and then soon began to relax....There was a light at the end of this long night!! I was so happy!
After Mark was so settled and relaxed we had a surprise visit from ENT again. They wanted to do another scope check and xray to make sure it was still just swelling and they did miss anything. They are a bit worried it is taken him so long to recover from the extubation. To be honest all I was thinking was what are you doing waking this sleeping child?? Well the good news is they are still seeing the same results as last night, it's just taking Mark longer to recover. We ended our day with Dialysis treatment for 90 minutes. He is doing great from a renal stand at the moment. His levels seem to be getting better and he is tolerating treatment. I am thinking tomorrow treatment maybe be bumped up a bit longer. Tomorrow is a new day....Let's all hope mark can drink water and loose the mask!
Here are some pictures of our CHB suite: