Saturday, October 22, 2011

10 Months

There is one good thing about all of this waiting...We have had the opportunity to not miss out on much this Fall!  My fear...spending another Christmas at Children's.  We were told he could be listed up to 100 days.  100 days will be on November 9th....That is close to the start of the holidays.
Tonight we will celebrate 10 months at the Franco in Westford.  A family friend is hosting a fundraiser for Mark.  Mark just keeps on saying he is so excited to dance the night away!  It will be a nice distraction to see people and have a good time.
Let's just hope I will be blogging about transplant when we hit 11 months.  Please keep your fingers crossed!

Field Trip Day earlier this week!

Tuesday, October 18, 2011

Thinking About Christmas

Yes I said it...Thinking about Christmas.  There are lots of reasons why this wonderful holiday is crossing my mind.  I know.... Can we get past Halloween and Thanksgiving first?  This all stems from the dreaded Endocrinology appointment and the "Toy book".  First the toy book (as Mark likes to call it).  Mark came off the bus with a toy catalog from the bus driver.  He wouldn't stop looking at this magazine.  He kept on saying "Can I have this from Santa?"  So I gave him a pen and told him to start circling.  He did..happily!  I thought the entire book would be circled when he finished, but to my surprise it wasn't to bad.  His prize possession out of all the toys in the book...The Tea cart.  Yes The Tea Cart.  I wish I could find the book so I could take a picture of it, but I bet Mark is sleeping with it at the moment!  It is a red cart that comes with tea cups, a tea/coffee pot, dishes..ect.  He thinks it will be fantastic to be able to serve his Mom and Dad tea and coffee on Christmas morning...and many days to come!  The book came home almost 2 weeks ago and the Tea Cart is still the favorite!
Moving on to the appointment.  I was dragging my feet not wanting to go to this appointment last week.  The Renal doctor had suggested we go to the Endocrinologist just as a check in due to his labs being off.  When we arrived the first thing the doctor said to me was "Why are you here? The doctor that sent you did not send a referring note".  At that moment I wanted to scream!!!  So I explained to her the highs and lows in his lab results.  She looked at me and said "Well maybe if he had a kidney that worked this wouldn't be a problem".  At that moment I wanted to high-five her.  I controlled my self...I thought it my be a little wrong...but I was happy to hear that was her solution!  These levels we are looking at have always been a challenge for him, so it's no surprise to me that we would see bigger spikes in drops with his current state.  Moving on with the appointment she brought up another subject...Puberty.  I wanted to crawl under my chair..I know childish...I'm a mother I can had this!  As I stare at my innocent sweet little boy that really only wants a Tea Cart for Christmas, I'm not grasping the conversation.  Needless to say I will spare you the details, but the process has begun.  It just seems weird that Santa will bring a Tea Cart this year and replace the bubbles in the stocking with deodorant.  God who knew parenting could be so rough!