Special Delivery

Mark and I had a late start today!  We slept in a bit...boy it was nice.  We woke up about 8:30 all snuggled up...Mark, Myself, and the dog.  No one wanted to move this morning.  We did have a late night last night.  We had to go pick up the car, so we decided to stop at Friendly's on the way home.  Mark was so excited, he loves going out to eat...Thanks to a couple gift cards Mark was a happy camper!  Once we got moving this morning we were lucky enough to have Amanda stop by. She brought coffee, breakfast sandwich for Mark and most of all great company!  Mark also had PT before we had to head into Boston.  We had a busy morning and before we knew it we were in Boston.  Mark has had good treatment so far today!  We have been busy...Mark played on his ipad, and worked on some cool projects.  I had to fill out more paper work with Renal Social Worker.  Tonight we are going to go home and try to have dinner with Evy and Bobby.  Last time we did this Mark had a seizure.   This day has been uneventful so we hope it will stay that day.

Today we also received a special delivery of gift cards from the Tyler Foundation.

The Tyler Foundation's mission is to provide financial support to families' of children with epilepsy that are being treated at Boston Children's Hospital and UMASS Medical Center.

Due to Mark's seizure condition we have been able to receive help from this foundation.  The Tyler Foundation is local to us.  They are based out of Groton, MA.  We have received help from The Tyler Foundation in the past.  The founders are Heather & Erik Plotkin.  I encourage you to please check out their website and read their story.  I have not been in contact with them recently, but Thank Heather & Erik again for supporting us during this challenging time for us again.


Mark was happy to deliver more cookies to his Nurses today from The Operation Baking Kids baking club.  They're loving the special Friday deliveries.