"What a day"

Today was a very quiet day....We had a flow of visitors who were are nicely scattered.  We started off pretty early with Dialysis today.  I want to say somewhere around 10 this morning.  They bumped Mark's treatment to 2 hours.  He is getting so close to a full treatment with no issues.  I'm sure the sedation is helping, but we take what we can get around here!  After the treatment was over the dialysis nurse wanted to change the dressing around Mark's cath.  He was then given a sponge bath and new bedding.  I think he was feeling refreshed and good with the mask off for that time.  The nurses had noticed he was holding his stats good so they suggested we go with out the mask, and put a call into the attending.  She agreed we could try it out and see how he does.  So when there is no mask, there is no sedation.   After a little while Mark talked here and there. 

Somethings he said:

• I want my water                                          
• I want a bagel 
• what a day...what a day
• Go to Dunkins...Can we go to Friendly's
• I'm scared
• I don't feel well 

He really loves to talk about water and food, with some select comments in between.

As time went on with out the mask you could here his breathing so they suggested another chest x-ray.  Before you knew it we had that mask back on our face.  He is just working to hard to breath along with the swelling not fully down.  I'm sure tomorrow we will see ENT again.  He had been a bit restless this evening trying to settle for the night.  The doctor agreed we would up sedation for the night and keep him happy.  We also had to replace another IV tonight....Mark did not help remove this one...it just went on it's own!  So we hope for a quiet night with lots of sleep...Hoping tomorrow the mask will stay off, and the sedation will wear off.  During that process he may be a bear, we may not also sleep...But it is all worth it in the end!

We also want to THANK everyone for all the wonderful support at this time.  We have received numbers of emails, phone calls, texts, and cards.  Also the stuff that has come to the hospital...Gifts , food, magazines, books....even a Christmas tree....Thank you all so much!

xoxo

All the snacks we could ever want!