As you can see yesterday was a hard day. Mark woke up with a cold, but seem to be okay. When we arrived at treatment he was ready to go. He had a dance party with everyone in the unit. Music blasting and Mark wiggling in his bed busting a move. Things changed real quick. He spiked a fever during treatment and went down hill. Once you spike a fever that causes a major set back for the day. He had to have a culture done and have an IV treatment of antibiotics. They have to culture to make sure there is no infection in the line. The nurses were sure that it was caused from the cold...but better to be safe and run a culture. It is obviously very dangerous if there is an infection in a central line. The original plan for yesterday was to arrive early to treatment so we could see the eye doctor after dialysis. He needs to see the eye doctor as part of the many appointments to be cleared for transplant. We unfortunately had to cancel this appointment. He had to receive the IV medication after he was done with his dialysis treatment. The antibiotics take over an hour to be infused into him. We arrived in Boston at about noon time yesterday..and got home around 8. What a day! Mark was very disappointed to not make it to school today, but he needs to get better. He rarely goes to school as it is...so it's tough when he has to miss a day.
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