Wednesday, March 16, 2011

Baby "Fake"

We arrived in Boston with Mark's baby in hand.  She was going in for catheter placement.  Mark eagerly awaited for his baby to come out of surgery.  Mark says she is holding up well from her surgery.
Meet Baby "Fake"...how fitting!  She is named after my friends little girl Faith...but Mark can't say Faith so he says fake..haha! 

Mark on the other hand is beeping up a storm.  No matter how he positions himself he sets the alarms off.  We have had one great treatment since the catheter replacement.  Monday was not so great...today he is not feeling sick but he can not move at all!!  How do you get a small child to lay still for 3 hours....Thank god for Johanna the Child Life Specialist and Lauren will be here to do art soon.  I have been busy this afternoon working with the transplant secretary.  We are busy compiling the rest of the information we need from the potential donors.  We will be moving forward soon with the tissue typing in hopes to find a match!  

I am sorry to report Baby Fake was rushed back to surgery for a clogged catheter.  Mark is busy working an art project while he waits for her!

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