Feeling Under The Weather

The last couple of days have been no fun in our house.  Leaving me no time to blog, just time to act as a home nurse!  During dialysis on Monday Mark was not feeling that great.  As soon as he was done with treatment, and unhooked he spiked a high fever.  This means they would have to do a culture, and give him antibiotics through his catheter.  The antibiotics take about an hour to administer.  We did not get home until almost 9 Monday night.  
Tuesday Mark woke up feeling miserable and 3 new medications added to his list...Tylenol, Valium and and oral antibiotic.  The antibiotic is very important due to the fevers.  The fevers can be a sign of infection in his line.  Obviously that can be very dangerous...so they watch this closely.  We will have routine culture for the next couple appointments to make sure there is no infection in his catheter.  He will have one more dose of IV antibiotic and stay on the oral antibiotic for 2 weeks.  The Valium was given to help safeguard Mark from any possible seizures.  He remained quiet miserable for all of Tuesday and was in in bed by 6.  Tuesday we were in contact with CHB about Wednesday expected weather.  I went back and forth about getting a hotel room because I just didn't want to drive.  The nurse had to get back to me because he had been sick.  She needed to check it over with the team if we could skip treatment for a day.  When she called back Tuesday evening the had agreed it was okay to miss as long as we could be in Thursday morning for 7:30am.  Also as long as there was no fevers over 38.5 c.  
Wednesday we were all home for the day.  Chris' work was shut down.  Mark was still feeling pretty junkie.  We did nothing all day but lay on the couch and watch movies.  Chris was busy doing stuff around the house.  I was starting to feel a little sick myself.  My head is very congested.  I am hoping that this will all pass soon...I can't afford to be sick and Mark just needs to be better!  
We headed in to Boston bright and early this morning.  We left at about 5:40 and arrived here for 7.  It is nice being here early...because we will get home early.  We have been busy since we got here.  I had paper work to read and sign.  Mark was seen by one of the doctors.  He was given a nebulizer treatment to try to break up the cough he has.  We also will go down for another chest x-ray to make sure nothing has changed since Friday.  The team will also have his monthly round today.  The team will call me to do an overview of his treatment and how it has all been going.  We will most likely discuss the catheter issue!  Rumor as of this morning is that they will not attempt to move it.  His labs have been coming back at a good level even with the lower flow rate.  The nurses had mentioned that they will still go along using it until it starts to clot again.  This is all just a guess on how it will go...so hopefully we will find out what the real plan is.