Family Meeting

Mark and I were up early to head into Boston this morning.  We headed out to go to an appointment with his primary care doctor.  We were then going to meet the family in Boston for the family meeting.  It took us a full 30 minutes to go to the end of our road.  We decided to turn back and skip the appointment with the primary doctor.  We then headed out a little while later with Chris to get to Boston for the meeting.  It was slow going...but we made it!  

The meeting was full of lots of information.  We left with a huge packet of papers and our heads spinning.  We have a little time to tell them when we want to move forward with the transplant.  We need to make the choice if we want to go with a live donor or not.  We need to way out the pros and cons of both donor options.  This seems like it will be the hardest decision to make.  I know we will make the right one...it will just take time.  The next hard part about all of this will be the intense recovery process.  It is all so much to explain.  I will blog about each step in this process as we go through it.

I have to say mark was so excited to be a part of the meeting today.  He felt like such a big guy with his meeting papers.  He sat quietly listening for a little bit....but soon turned to some play-doh fun with Johanna.  She is the Child Life Specialist in the dialysis clinic.  We are happy and relieved at the same time to have had this meeting today.  We know have all the information we need to move forward with this process.

We made it!!