Long Night Makes For A Long Day

Yesterday was one month...it was my 45th post on my blog and we had over 6000 hits since I started.  It so nice to see how much people care for Mark.  Also as I mentioned it was Sunday...so we had plenty to celebrate.  We started our day off with company.  Tracy and Rach stopped by for some coffee and a little playtime with Mark.  After they headed out we got ready to go out.  We packed up our bag for the day and we were off.  We had a busy day of friends, yummy food and of course football.  There was also some play-doh, ipad and helicopter action in all of this too.
Last night was a long night.  Mark was up so much through the night.  He did not want to go to bed and absolutely did not want to leave my side.  It was a long night, which made for a hard morning today.  I could not move at a fast pace if my life depended on it.  We got out the door and were on the road on time.  Some how we ended up arriving to dialysis 10 minutes late?  I don't know how that happened...the traffic wasn't too bad.  
Mark once again has not had the best treatment today.  He has been sick....He finally has fallen asleep at about the half way point.  The two things that they are working on is taking fluid off at each treatment and increasing the rate.  When they increase the rate of the blood flow there always seems to be a problem.  His lines clot and he seems to get sick.  The nurse says he can be getting sick from trying to take the fluid off.  So today the lowered the rate and are not taking fluid off.  This is a problem.  The rate needs to be increased to have more success with his treatments.  After talking with the doctors today they feel as if the nurses are   exhausting all options to give his lines success.  If they can't increase the rate of the blood flow, the doctor mentioned coming in for longer treatment time.  She also said they do not want to do that for  long period of time.  In the end off all this chat, they have decided if we don't a successful treatments this week they will be going back to talk to the surgeon.  They hope that if we go in for surgery again we will be able to use the same catheter.  If not they will move it to the other side of his chest or to his neck.  If they can use the same line it sounds like it will be a quick thing.  The nurse had mentioned they go in and just adjust the placement a bit.  I am not sure how long a hospital stay would be for this...but after seeing the doctors today I'm going to pack a bag and keep it with me just in case!  I can't wait to get out of here today...I hope that Mark sleeps tonight because he has been sleeping for awhile now!

Yummy dinner...

Mark pointing to his cool mom shirt

Play-Doh!