What A Long Day

What a long day....Mark was a bit under the weather this morning.  He didn't sleep well last night, complaining about body pains.  His appetite was on the lower side, and he was sleepy this morning.  I was a bit concerned but figured I wouldn't stress since we were on our way to Boston.  After our drive in Mark was ready to get to dialysis.  Mark was a bit quiet at dialysis but seemed to be okay.  Once he was hooked up to the machine...all went down hill.  Mark was very sick throughout treatment along with fevers.  This was not a good day.  If he wasn't sleeping he was crying.  He made it through 3 grueling hours of treatment.  At the end of his treatment we were sent to x-ray.  We needed to have an x-ray of his abdomen and a re-do of his chest.  The team wanted another look at the cath from a different angle.  They wanted to be sure on how far it has shifted.  This may give you the answer to whether or not they want to adjust or move the catheter???  Who knows??  We never got to talk about it today...They are hoping Monday we will have an idea of what to do.  After x-ray we were heading upstairs back to dialysis to talk about the x-rays and maybe get medication if needed for the weekend.  Mark had a different plan for our walk...A seizure.  In the middle of the most empty hall in Childrens.  I had to yell down the hall for a nurse to help!  Once we found a room to put him in and stablize him, we paged a Renal fellow to come down.  The seizure was between 6 and 8 minutes...not to long...but long enough.  Once the Renal doctor checked him out we headed back up to dialysis to wait on our labs.  We were cleared to leave before the levels were back.  The doctor is going to call me with any medication changes if needed.  We finally made it home just before 9 tonight.  Mark was happy to get in his bed and call it a day....I'm ready too!